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So, what now?

In the years since my son has been diagnosed, and the countless other parents I’ve spoken to, I’ve realised that when you receive your child’s diagnosis you are given very little other information. During the appointment you hear so many new terms and different scores that it is only when you get home and process you realise that you don’t know what you can do next.

I wanted to create a space that will give parents, guardians, caregivers all the information they need. What you’re entitled to, the school system, explanations of all the new terminology. A world that you’ve been dropped into where you barely speak the language and have no idea which direction to go. Hopefully this is your new map.

Firstly, allow yourself to feel whatever emotions you feel. No matter how prepared you were for a diagnosis it can still come as a blow to see it on paper. If you feel upset, be upset, but don’t forget that it is still the same child you loved yesterday. No piece of paper will change that. Try not to think too far into the future because I promise you that you have many amazing moments ahead of you that you can’t possible imagine yet.

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